• Final push to raise money for Ipswich girl with rare neurodegenrative disease


    IPSWICH, Mass. - As a 12-year-old from Ipswich continues to fight a rare neurological disease, friends and family hope to raise enough money to help find a cure.

    But they only have 2 days left.

    Talia Duff has been diagnosed with Charcot Marie Tooth, Type 4J - also known as CMT4J. She's one of 22 people in the world known to have the neurodegenerative disease, which is similar to ALS.

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    Research for the disease is underfunded, so Talia's family has been raising money for a cure.

    Talia's father told Boston 25 News they hope to raise $1 million to begin human clinical trials.

    Her classmates put together a fundraiser for Talia earlier this month.

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    So far, more than $800,000 has been raised - but according to Talia's family, they need to raise $1 million by the end of 2017 to continue their trial.

    You can donate online.

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