IPSWICH, Mass. - As a 12-year-old from Ipswich continues to fight a rare neurological disease, friends and family hope to raise enough money to help find a cure.
But they only have 2 days left.
Talia Duff has been diagnosed with Charcot Marie Tooth, Type 4J - also known as CMT4J. She's one of 22 people in the world known to have the neurodegenerative disease, which is similar to ALS.
Research for the disease is underfunded, so Talia's family has been raising money for a cure.
Talia's father told Boston 25 News they hope to raise $1 million to begin human clinical trials.
Her classmates put together a fundraiser for Talia earlier this month.
So far, more than $800,000 has been raised - but according to Talia's family, they need to raise $1 million by the end of 2017 to continue their trial.
You can donate online.
© 2018 Cox Media Group.